We are off to Austin.. keep fingers crossed

We spent a couple of days with family in NOLA.. My mom hasn’t been well, however she looks great and seems to be getting better. Congestive heart failure, kidney and liver failure all take their toll on a person. She is strong, motivated and has lived for over 10 years with the heart failure. She and my dad inspire us to keep going and stay strong.. and tell us that under any circumstance, do not let anyone stop us and never take “NO” for an answer.

Kezia still has back pain. I fear its from her own cancer. Of course, I tend to worry to much. Lochlan still isn’t feeling well. His appetite has been low, upset stomach and just a bit clingy. As a parent of a child who died of cancer, Neuroblastoma, you always worry about your other children; I wonder, does he have early stages and we don’t know it? No, its such a low probability – like almost 0% chance. But its still a fear and most other parents in our support circle and beyond have the same fears. The reality is, the travel and not having his regular diet takes a tole. Plus, we feel the largest factor to him not feeling well is he is cutting a tooth.

In about half an hour we are setting off for Austin. Its about 8 hours.. 10 with Lochlan. This is ok because we want to make sure he gets some exercise and a chance to get out and run around a bit during the trip.

We have a lot of work to do while driving. We are still preparing for this pitch coming up Monday. We are nervous, however not that much. The bottom line is, its our pitch, our company, our product and design – we know it and we got this!

Kezia has done a great job writing the pitch and working with our coaches to refine it to be the most impactful. We will write more tonight or later today..

Central Line Care – Reduced bloodstream infections at three hospitals

The threat of a bloodstream infection while Saoirse had a Central Line was always on our mind. It never left. So our thought was to reduce the total amount of potential threats as possible. We did this with constant cleaning and with the help of her CareAline® Wrap. As a parent of a child who was sick, knowing that an infection could hinder the chemotherapy she was receiving for Neuroblastoma, we stayed very aware of her lines. We focused primarily on the caps. We knew the risk of infection increased if we let her caps and lines drag along the ground, couch, chairs, toys and carpet while playing and we were terrified of her caps getting in her diaper. We would constantly ask ourselves, “how do we keep her central line safe?”. Its a constant for parents and caregivers. A constant worry and a constant fear. There are some really great ways to keep lines clean and safe. I came across the following article on reducing central line infections and thought you may like to read it.

http://www.infectioncontroltoday.com/news/2014/06/bloodstream-infections-reduced-through-better-central-line-care-at-three-hospitals.aspx

 

 

Lyme disease epidemic

We live an area heavily populated with deer. We are always on the lookout and checking for Tics. This is an interesting article on shared experiences. 

 

http://www.gazettenet.com/home/12399577-95/tick-talk-panelists-public-share-experiences-with-lyme-disease-epidemic

 

 

Basic Infection Control and Prevention Plan for Outpatient Oncology Settings

When your child, or yourself get a line placed, it is a scary thing. We ran into a few times where we had to do a dressing change on our child’s central line – it was scary. There is an infection risk if the site (considered an open body wound) is contaminated. luckily we payed attention and tried to assist how ever we could. The fact that our daughter was wearing a CareAline™ Central Line Wrap helped, because she had not had any tape trauma. Understanding the situation and studying how to lower risk of infection can empower you to take charge when needed. Always check with your nurse or doctor and review step by step procedures with them. Ask the nurse or nurse trainer to explain the steps and don’t be afraid or intimidated to ask questions. Nurses are awesome and were always happy to answer our questions. I took the information below from the CDC.gov site. Most of your hospitals websites will have information on caring for PICC Lines, Central Lines and other catheters as well. We hope this helps. Remember, information is key to being prepared. Of course I would be remiss if I don’t mention the CareAline™ PICC Line Sleeve and the CareAline™ Wrap for Central Lines, G/GJ Tubes, PEG and various other catheters. An essential line management system to keep your lines safe, clean and put away with out the use of additional tape**.

 

VI. Central Venous Catheters

The procedures outlined below pertain to the access and maintenance of long-term central venous catheters (e.g., vascular access devices). These include peripherally inserted central catheters (PICCs), tunneled catheters (e.g., Broviac®, Hickman®, and Groshong® catheters), including tunneled apheresis catheters, and implanted ports. For other types of access devices, such as intraperitoneal ports, refer to guidelines from relevant professional societies (e.g., Oncology Nursing Society).

Several recommendations in this section have been adapted directly from the Oncology Nursing Society Access Devices Guidelines and the Infusion Nursing Society Standards of Practice. There is not a consensus over the use of clean versus sterile gloves when accessing certain vascular access devices, such as implanted ports; where indicated, recommendations by specific professional societies are provided. While the recommendations below apply generally, healthcare personnel are to follow manufacturers’ instructions and labeled use for specific care and maintenance. Only healthcare personnel who have attained and maintained competency should perform these procedures.

A. General Maintenance and Access Procedures

1. Accessing Central Venous Catheters

This procedure applies only to PICCs and tunneled catheters, including apheresis catheters. Refer to Part D.1. below for accessing implanted ports. In general, closed catheter access systems should be used preferentially over open systems.

  • Maintain aseptic technique
  • Perform hand hygiene and assemble the necessary equipment
  • Wear clean gloves
  • Scrub the injection cap (e.g., needleless connector) with an appropriate antiseptic (e.g., chlorhexidine, povidone iodine, or 70% alcohol), and allow to dry (if povidone iodine is used, it should dry for at least 2 minutes)
  • Access the injection cap with the syringe or IV tubing (opening the clamp, if necessary)
  • Perform hand hygiene when done

2. Blood Draws from Central Venous Catheters

  • Access the catheter as outlined above, maintaining aseptic technique
  • Remove the first 3-5 mL of blood and discard
  • Obtain specimen
  • Flush with 10-20 mL of normal saline (clamping the catheter as flushing is completed, if necessary) and promptly dispose of used syringe(s)
  • Perform hand hygiene when done

3. Flushing technique

Refer to the manufacturer’s instructions of the catheter and the needleless connector for the appropriate technique to use; unless otherwise specified, perform the following:

  • Single-use flushing systems (e.g., single-dose vials, prefilled syringes) should be used
  • Access the catheter as outlined above, maintaining aseptic technique
  • In general, avoid using a syringe less than 3 mL in size to flush, preferably use 10 mL
  • Flush the catheter vigorously using pulsating technique and maintain pressure at the end of the flush to prevent reflux
  • Positive pressure technique (may not apply to neutral-displacement or positive-displacement needleless connectors):
  • Flush the catheter, continue to hold the plunger of the syringe while closing the clamp on the catheter and then disconnect the syringe
  • For catheters without a clamp, withdraw the syringe as the last 0.5-1 mL of fluid is flushed
  • Promptly dispose of used syringe(s)
  • Perform hand hygiene when done

4. Changing Catheter Site Dressing

This procedure applies only to PICCs and tunneled catheters, including apheresis catheters.

  • Supplies for site cleansing and dressing changes should be single-use; refer to manufacturer’s recommendations to ensure compatibility with the catheter material
  • Maintain aseptic technique
  • Perform hand hygiene
  • Wear clean or sterile gloves (additional precaution per Infusion Nursing Society includes use of facemasks and sterile gloves)
  • Remove existing dressing and inspect the site visually
  • Apply antiseptic to the site using >0.5% chlorhexidine preparation with alcohol; if there is contraindication to chlorhexidine, use tincture of iodine, an iodophor, or 70% alcohol as alternative
  • Do not apply topical antibiotic ointment or creams to catheter site
  • Cover with either sterile gauze or sterile, transparent, semipermeable dressing (refer to catheter-specific recommendations for frequency of dressing changes)
  • Perform hand hygiene when done

5. Changing the Injection Cap (e.g., Needleless Connector)

This procedure applies only to PICCs and tunneled catheters, including apheresis catheters. Refer to manufacturer’s instructions for how frequently to change the injection cap; if information is not available, in general, change every week or when there are signs of blood, precipitate, cracks, leaks, or other defects, or when the septum is no longer intact.

  • Maintain aseptic technique
  • Perform hand hygiene and assemble the necessary equipment
  • Wear clean gloves
  • Scrub the injection cap and catheter hub with appropriate antiseptic agent; clamp the catheter if necessary as cap is removed
  • Attach new cap to catheter hub using aseptic technique
  • Perform hand hygiene when done

B. Peripherally Inserted Central Catheters (PICCs)

Refer to steps 1-5 in Section VI.A. above for PICC access and common maintenance procedures. Additional recommendations for routine maintenance and care:

Frequency of dressing change:

 

  • Change 24 hours after insertion
  • Transparent dressing: change every 5-7 days unless soiled or loose
  • Gauze dressing: change every 2 days or as needed if wet, soiled, or nonocclusive
  • Flushing: use of heparin flushes and the recommended concentration and frequency of flushing are determined in accordance with manufacturer’s instructions and per the treating clinician’s orders (in general, for valve catheters or closed tip catheters, flush with normal saline unless otherwise specified)

C. Tunneled Catheters

 

Tunneled catheters include Broviac®, Hickman®, and Groshong® catheters, as well as apheresis catheters. Refer to steps 1-5 in Section VI.A. above for catheter access and common maintenance procedures. Additional recommendations for routine maintenance and care:

Frequency of dressing change:

 

  • Change 24 hours after insertion
  • Transparent dressing: change not more than once a week unless soiled or loose
  • Gauze and tape dressing: change every 2 days or as needed if wet, soiled, or nonocclusive
  • Once healed, tunneled catheters may go without a dressing unless the patient is immunocompromised
  • Flushing: use of heparin flushes and the recommended concentration and frequency of flushing are determined in accordance with manufacturer’s instructions and per the treating clinician’s orders (in general, for Groshong® catheters, valve catheters, or closed tip catheters, flush with normal saline unless otherwise specified)”

 

*Taken from Centers for Disease Control and Prevention 

http://www.cdc.gov/HAI/settings/outpatient/basic-infection-control-prevention-plan-2011/central-venous-catheters.html

** CareAline Products do not replace the sterele dressing and CareAline Products are not water proof or resistant.